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Thursday, 02 April 2009

  • Wii Fit and Fibromyalgia

     Fibromyalgia essentially tries to turn your body into on giant nerve-ending, shooting pain and ache up and down your body with each move it makes. This makes movement difficult because we, as humans, generally do not like to feel pain. For me, personally, ache is much worse than pain and unfortunately, fibromyalgia offers that as a gift, too. I was speaking with my doctor about what exactly I could do to help my body out, build a thicker skin if you will, so that I can act like a thirty-two year old woman and not have this completely take all livelihood away from me. That is important to me for a lot of reasons - not just my quality of life - but I want my daughter to have a mother that is active in her life. My mother became ill when I was thirteen so I understand how hard it is growing up, longing for that. I also want my husband to have a wife that can take care of him, because hey, I am a traditionalist in that way. I understand it must be very, very difficult for him to limit what he does based on my limitations and having the pressure and stress to not only financially take care of us, but physically pick up where I leave off.

    My doctor suggested Wii Fit. At first I rolled my eyes, as I was never really a fan of the whole Wii concept anyway. Personally, as a semi-gamer, I thought the concept was great for kids but lame otherwise. My doctor said that this would allow me to track my progress each day, provide a safe environment for me to get my body moving since I am prone to stumble and fall, and would make it a bit easier to work with.  Given the spring rains and the summer heat and my aversion to gyms and the fact there isn't a gym for quite a distance, this sounded like a possible avenute to take. I considered it, spoke to my husband about it, and we now have a Wii and a Wii Fit.

    I was dreading setting up the Wii Fit because I didn't want to know my BMI or my weight or my Wii Age. Actually, that's not true. I knew what my weight was from my previous doctor appointment. I knew what my  BMI was because I knew my weight and I really didn't know what a Wii Age was or its significance. I think the better thing to say here is that I didn't want my husband to know my weight or my BMI. Since he was excited to see how this thing was going to help me and was sitting on the couch while Wii Fit was being set up, well, the cat is out of the bag.

    The Wii Age is the age you are based on balance tests that are performed on the balance board. Balance and Fibromyalgia - you have eto be kidding me, right?

    My Wii Age was 57. This essentially means my body operates like that of a 57 year old. Did I mention already that I am 32. You do the math.

    I scoped out the options in the different cateogories: Yoga, Strength, Balance, and Aerobics. There are certain activites already unlocked and others that you unlock based on time spent and performance. Wii Fit keeps track of your usage for the day, what activities you did, and you have the option of doing the body test every day to check status on your improvements to your weight and BMI. It comes complete with graphs and everything.

    Yesterday I put in twenty minutes. Today I didn't feel overly sore, though I was a bit achey. Today I put in another twenty  minutes, even running in place for a short race. I am feeling it today, however, and realize if I am going to do the running, I need some sort of outside support for my knees and ankles.

    All in all, not bad. It tracked some improvement to my weight - almost three pounds - which astonishes me. It is only day two, however, so I am not sure of the accuracy, etc so I am not going to bank too much on that. Needless to say, it has been a positive experience for me thus far and I do believe it will medically be helpful for me in a lot of different ways - if not to simply push me when I am feeling exceptionally fatigued and in pain - to keep putting one step in front of the other and keep moving forward.

    Here I was, the person that openly mocked Wii. Well, when I am wrong I will admit it, and I have to say when it comes to the Wii, I was wrong.

Tuesday, 31 March 2009

  • Diagnosis!

    We have on medical clinic in town - a modular home turned into a medical office. The living room of the modular home is the waiting room, and they built walls to make bedrooms smaller and convert them into examination rooms. It's a little office, but I like little offices, as they tend to have a more personal feel to them and calling and talking your doctor is not an impossible task. You actually get somewhere with them, and not just your voice mail. One doctor practices there, they don't prescribe narcotics for chronic pain or tooth pain, and their billing system consists of a receipt book and a written spreadsheet in your file. My doctor is probably in his forties, has a last name that is another word for ass, and wears a Spongebob tie. He cracks jokes in the middle of being serious, but he is a good doctor. I have had my share of doctors and I like him.

    What was meant to be a simple office visit ended up turning into one of medical records release, patient education, testing, prescriptions, another visit in a month, and more testing schedule. My poor husband and daughter were stuck waiting forever, though they did leave once or twice to go a grocery run. They were very patient and for two people who can sometimes not be patient, they did very well!

    He believes there was a misdiagnosis with the COPD. He believes that perhaps I had a very, very bad virus and that affected the plethora of breathing tests that they gave me. He says it also makes sense that since living down here, I have only had difficulties with my lungs once or twice, but never requiring my husband to accompany me to the Emergency Room like he had when we lived up North. (Which he is very relieved about, not being a great fan of hospitals anyway) He gave my lungs a listen and said that they sounded really good. That's not why I went to the doctor's office, but it is an important part of my medical history (and records release) and he wanted to check up on it. I am pretty pleased that he did, actually, because the threat of COPD has added a lot of stress to our lives. Stress bye-bye.

    I was, however, diagnosed with fibromyalgia. I knew that I did, so a formal diagnosis of that wasn't really something that was suprising to me.  It makes sense. It makes a lot of sense, actually, with the difficulties that I have with my body - aches and pains, sleep disturbances, etc. He said what it essentially means is that my body is trying to turn me into a statute. He said I need to sleep. I laughed at that because I would like nothing more than to be able to do so. He prescribed Ambien for me to help me sleep. I don't know if it helped me get to sleep last night, but what it did to is helped me to get better sleep and my mood today really reflected that. He also prescribed Cymbalta. The FDA has approved it for the treatment of fibromyalgia.

    He believes that there is something wrong with my thyroid - which also makes sense - so I go in next week for testing for that. And diabetes. He believes that because of some of my symptoms and how it runs in my family, diabetes finishes off the trifecta.

    The good news - my lungs aren't drying up. The bad news - pills, pill, pills. Changing how we live our life. Feeling like a old woman at 32.

Monday, 30 March 2009

  • Fibro, Diabetes, Thyroid Oh MY!

    I will be making a longer post on this tomorrow, but I needed quickly make note of this.

    I went to the doctor today. I was given a definite fibromyalgia diagnosis. I have to go back and be tested for diabetes and my thyroid. My doctor is convinced that there are problems with my thyroid and almost convinced that I have developed type 2 diabetes.

    I feel a bit numb -- trying to process.

    More tomorrow.

Saturday, 28 March 2009

  • Our Daily Bread

    I have many memories of my childhood, waiting patiently while the house filled with the aroma of warm bread baking in the oven - taunting me. When it came out of the oven, I would watch my mother butter the top of each loaf, waiting for her to tell me it was time to have a slice - ah, just the thought of it makes me crave the carb-filled yummy goodness of my youth, because you know no matter how hard you try, you simply cannot recreate what your mother made. Just. Not. Happening.

    With the prices of groceries now, and the fact that I am home all day click-clacking away and teaching Cleo, I have the time and the opportunity to make homemade bread each day. Swamp Daddy loves it. Cleo loves it and I find it oddly therapeutic - particularly kneading the dough on an especially stressful day. The added bonus is that it is so much cheaper to make bread than it is to buy bread. The average loaf of bread here in Southern Louisiana is $2.75. By buying flour, yeast, and vegetable oil in bulk, I can make a loaf of bread for approximately 53 cents. Yes, 53 cents. That's saving $2.22 per loaf and when you go through a loaf a bread every few days, the savings per month really adds up. (The savings from making bread alone pays for the Internet service each month) Plus, it is healthier without all of the preservatives and garbage put into manufactured food and homemade is ALWAYS better!

    You can make more than one loaf and freeze it, take it out in the morning and it is ready to be put into the oven in the afternoon or evening. Time saver, fo sho!


      

    Here's the recipe I use for your simple loaf of white or wheat bread:

    3 cups flour (white or wheat)

    1-teaspoon salt

    1 package, or 2 teaspoons yeast

    1-tablespoon sugar (or brown sugar, or honey)

    2 tablespoons vegetable oil

    1 cup of lukewarm water.

    1. First, mix your dry ingredients, and then add oil and water. Stir with a fork or spoon until sticky and stiff.
    2. Turn your dough onto a floured counter top, and knead for a full 5 minutes.
    3. Place your dough back into the bowl and cover with oil, move dough around so all sides are covered.
    4. Place your dough into a warm spot, free of drafts with a cover (such as a table linen, or dishcloth) and let it set for about 2 hours.
    5. After it has set, take it out and “punch” it down to release any built up air inside, knead again.
    6. Place dough into very well greased loaf pans, and let it rise again for about an hour.
    7. Place in oven and bake at 350 degrees for roughly 30-40 minutes.

Friday, 27 March 2009

  • Multiple Blessings

    There are many different things I want to blog about: the show Toddlers and Tiaras, home school panic for a first-timer, custody battles and how fun they are not, alligator safety classes that I was offered, and many others, but tonight I feel compelled to blog a bit more personal.

    The past year has been a difficult one. When I say it was a difficult one, I am not exaggerating in the least. In fact, it was probably the most difficult year of my life, which says a lot considering some of the experiences I have had on this wild and crazy journey. I found out horrible things that happened to one of my children, dealt with a nasty custody battle, found out that someone in my family suffers from mental illness, continued to deal with the loss of a parent, said good bye to two of my children, and really lost who I was. Some of the difficulties were my fault, consequences of bad decisions or wrong decisions. Some of the difficulties were caused by secrets that didn't need to be kept. Some difficulties were caused by change and adjustment, while others were caused by a broken system that is beginning to leave children behind. Despite the difficulties and gut-wrenching, heartbreaking moments, we made it through - as individuals, as a family - together and have lived to tell about it.

    Recently, change found itself in my life again, this time relocating not from the North to the South, but from the city to the country. Again I find myself in a situation where I don't know anyone, though I have found myself in contact with a local home school group and have been extended such sweet gestures of kindness that words to not adequately describe how appreciated they are. I find us starting our life over again, but this time, under better circumstances. I am in a much better place. Swamp Daddy is in a much better place. Cleo is in a much better place. This move, although resistant at first, has proven to be the path that we need to be on. I know that this is the path that we need to be on because when you are on the right path, things tend to fall into place.

    I remember a few months ago, when I was beginning to examine my faith again, I prayed for peace. I prayed that I would be in a situation where I didn't worry about my safety all of the time. I prayed for a home that fit my family, instead of trying to fit my family into a home. I prayed for the emotional well-being of my husband and children. I prayed that we could really begin to live our life again, instead of just treading life with our necks above water - whether it was because of time restraints, safety issues, finances, or just plain fear of taking a risk. I never really gave it much thought after that night. I let go of what was weighing me down and that was that.

    Looking back now, however, I find myself realizing exactly how much we have been looked out for and taken care of. With this move, comes financial freedom. We are buying our home on land contract. What we now pay for our house payment and all utilities equates what we were paying just for rent in New Orleans. No more outrageous electric bills on top of it. Or expensive cell phone bills. Or Directv bills. Or high -priced Internet bills. That is saving over $600/month. Addi tonally, I have found that things like milk, bread, and gas are a bit cheaper out here. AND my husband took advantage of an opportunity presented to him and he is now making much more money at his job than he did previously. I no longer have anxiety attacks. I have slept through the night every single night since we have been out here, something that hadn't happened in the city for nearly a year.

    My anxiety - or lack thereof - has made family life much happier as well. I am no longer worried about what is going to happen. I am actually able to enjoy my family again and because I am no longer a bag of nerves, I think that they can again enjoy me. I feel like I finally have a life again. Or maybe I am finally mature enough to know what I want my life to be.

    I feel really humbled tonight by the beautiful things that are happening in my life. I feel very blessed to have a husband who works so hard for our family and works equally hard at caring for me and making me happy. I am very blessed to have a daughter who thinks her mom is the coolest person ever, that loves the things I love, and teaches me about the things that I don't. I am amazed by this area in Louisiana where things are a little slower pace but the heart beat of the state is only down the road.

Misadventures of the Swamp Momster

  • First Name: Swamp Momster
  • Birthdate: 8/31/1976
  • Gender: Female
  • About Me: There are so many different facets to my personality and I am a little bit of everything, mixed up, and packed into one. I love to laugh. I am sarcastic. I am smart. I am strong. I am a writer and am blessed to do so for a living. I love literature, movies, and anything dealing with the creative arts. I enjoy politics. I am the mother of three amazing children, one having Asperger Syndrome. I have escaped an abusive marriage to find real love and my Lloyd Dobler. I am going through an emotional custody battle. I am originally from the North and decided to pack up my life in a car and head South and start my life all over again. Most of all, I am happy. Moved from the city to the swamp and now I am making my life simple, living with grace.